Key Assessment Guide for Congenital Myasthenia Syndrome
The following resources provide information and guidance for assessment of CMS. Wishing the pod-mmd las platform you can access all these videos and resources:
Quantitative Myasthenia Gravis Test (QMG Test) – Currently being evaluated in the CMS population
Repeated Sit-to-Stand in One Minute (STS1M) - Currently being evaluated in the CMS population
Myasthenia Gravis -Activities of Daily Living Score (MG-ADL) - Guide to conducting this Patient Reported Outcome Measure - Currently being evaluated in the CMS population
CMS Natural History Project Worksheets
These worksheets contain the QMG Test, STS1M Test, MD-ADL PROM and the HINE for young children.
Resources
The HINE Assessment will also provide further information on Assessment of babies and young children.
