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Top tips for managing periods in young women with a neuromuscular condition Advice leaflet: Having a pee away from home

Key Assessment Guide for BMD Suggested Clinical Measures For subjects who are walking well use the NSAD and FVC. This will include two times tests (RFF and 10m walk / run). If you are short of time, use the SOFT to capture general functional ability. The TUG is a good way to capture home functioning.​ [...]

Role of Therapy in BMD Minimise the development of contractures and deformities through a programme of stretches and, where appropriate, exercises ​ Maintain muscle ability over the long term​ Anticipate and minimise any secondary physical complications ​ Improve sleep quality, reduce pain and promote comfort ​ Delay age at which the client becomes wheelchair reliant [...]

Introduction to Becker Muscular Dystrophy​ BMD was first described in 1956 and like Duchenne muscular dystrophy (DMD) it causes muscle weakness (usually in males) which progresses over time. It has a milder phenotype than DMD as there is some dystrophin still present in the muscles. It can also impact heart and respiratory muscles which can [...]

Advice on Clothing In 2019, Sheila became a full-time wheelchair user and began navigating the world from a new perspective. This included identifying which clothing was practical for use in a wheelchair, ensuring enough movement for transferring between seats, staying warm despite reduced physical activity, and maintaining the ability to present herself as a full [...]